Online Survey and Consent Form

About this study

The purpose of this study is to find out more about pregnancy associated osteoporosis (PAO) which is a condition associated with bone fractures that can rarely affect women during pregnancy.

You are invited to complete this survey if you have previously been diagnosed with PAO.

A detailed information sheet can be found here.

The survey has two components. Phase I is a survey which collects information about a previous pregnancy in which you were affected by PAO. This survey has 7 sections (including multiple choice and text based answers) and should be done in one sitting. It should take no longer than 20 minutes of your time.

Phase I of the survey is completed anonymously and will not involve you providing any personal details. If you complete phase I of the survey you will be able to consent to take part in phase II of the study in which we will ask you to provide more details about yourself. Please note that if you decide to take part in phase I, there is no obligation whatsoever to take part in phase II. More detail of what is involved in phase II are provided on completion of the phase I questionnaire.

Who can take part in this study?

This survey is designed to be completed by women who have been diagnosed with pregnancy associated osteoporosis.

What about privacy and confidentiality?

Responses to the survey will be anonymous and will be stored securely on a password protected computer at the University of Edinburgh for 15 years. After this time, the data will be destroyed. Only the researchers conducting this survey and the study coordinator will have access to the data. The results of the survey may be published but will not include identifiable information.

Can I obtain a summary of survey findings?

At the end of the survey, you will have the option to download a PDF copy of your survey answers.

What if I have any questions?

If you have any questions about the survey you can contact Kathryn.Berg@ed.ac.uk or phone 0131 651 8726.

What do I do now if I wish to take part?

Please read the detailed information sheet and take enough time to ensure you know what is involved. If you have read and understood the above information and would like to participate in the survey, please click on the following boxes to indicate that you consent to take part in Phase I of the survey. If you do not want to take part please close the web page on your browser

 

Please complete the survey below.

 

Thank you!

 

Online Survey and Consent Form (Cases) Version 5.0 04/05/2022
IRAS: 287827

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