This is the data entry portal for the International Registry for Iatrogenic CAA.

 

  • You will be asked to provide your own details, and then details of the patient. 
  • You will only be asked to provide anonymised data.  Please do not enter identifiable information at any stage. 
  • You may find it helpful to have the patient medical records to hand for data entry.

 

  • We recommend that all living patients are asked to provide verbal and/or written agreement for their anonymised details to be added to this registry. 
  • We also recommend that you document this agreement in the patient's clinical record. 

 

  • We advise that you act in accordance with any relevant institutional, regional or national regulations relating to information governance and data protection

 

  • Please ensure your email address is entered correctly, as this will be used by the registry team to contact you in the future.

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