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Shared Statement of Commitment to PPI

 

About the Shared Commitment to Public Involvement

  • HSC R&D Division, Public Health Agency is working with the Health Research Authority, the National Institute for Health Research and a host of organisations across the UK to bring about changes which will drive up standards in health and social care research.
  • They include: the Academy of Medical Sciences, the Association of the British Pharmaceutical Industry, the Association of Medical Research Charities, Chief Scientist Office, Health and Care Research Wales, Medical Research Council, Medicines and Healthcare products Regulatory Agency, the National Coordinating Centre for Public Engagement, NHS Research Scotland, Universities UK, UK Research and Innovation and Wellcome.
 
The statement, signed by leaders at each organisation, reads:
  • ‘Public involvement is important, expected and possible in all types of health and social care research.
  • Together our organisations and members fund, support and regulate health and social care research. This statement is our joint commitment to improve the extent and quality of public involvement across the sector so that it is consistently excellent.'
 
  • People have the right to be involved in all health and social care research. Excellent public involvement is an essential part of health and social care research and has been shown to improve its quality and impact. People’s lived experiences should be a key driver for health and social care research.
  • When we talk about public involvement, we mean all the ways in which the research community works together with people including patients, carers, advocates, service users, and members of the community. Excellent public involvement is inclusive, values all contributions, ensures people have a meaningful say in what happens and influences outcomes, as set out in the UK Standards for Public Involvement.
 
  • Working together we will support the research community to carry out excellent public involvement.  We will provide or share guidance, policies, systems, and incentives. We will:
- listen to and learn from the people and communities we involve and apply and share that learning
- build and share the evidence of how to involve the public and the impact this has
- support improvements in equality, diversity, and inclusion in public involvement
 
We will embed this commitment into the decision-making processes of our organisations.’
 

As part of our own commitment, HSC R&D Division will:

  • Ensure Public Involvement continues to be a requirement in all our funding schemes and awards
  • Provide funding for Public Involvement through our PPI in Research Small Grant Scheme and funding awards
  • Continue to build on and develop our Public Involvement Enhancing Research (PIER) panel
  • Provide guidance and support for researchers through our Building Research Partnership programme
  • Share good practice in Public Involvement
  • Work closely with our UK colleagues to ensure NI aligns with national strategies
  • Evaluate the impact of Public Involvement in HSC R&D