‘We’ve been cast aside again but my daughter’s life matters’ – mum of teen with rare skin condition on cost burden

Claudia Scanlon and Dave Doyle with a signed rugby jersey being raffled to raise funds for charity Debra

Eilish O'Regan

The economic cost of caring for people with a devastating skin condition in Ireland now stands at more than €130,000 a year per patient, new research reveals.

Around 300 people in Ireland live with the painful skin condition epidermolysis bullosa (EB).